So we had our appointment today where we had hoped we may get a diagnosis for Luke's ongoing Gut problems. Well we didn't. They have had several discussions with other consultants but they are all clueless, whatever it is is unusual and very annoying. The upshot is we just carry on as we are and the team will do everything they can to help us manage the symptoms as best as possible and will continue to research what it could be.
They have also said that we must watch him like a hawk and take him to hospital as soon as he looks off colour as he is so prone to getting septacaemia but fingers crossed he will stay well for a very long time. The good news is that he continues to grow and put on weight so the TPN is doing its job well.
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