I haven't been able to blog for a couple of weeks as Luke has been in hospital again. He woke up on the wednesday morning before Easter with a very high temperature and was very lethargic. By the time we got to the children's ward his temp was 40.2 and he was really drained so they did all the usual bloods and started IV antibiotics. He was up all night vomiting and his temp just wouldn't come down and so I spent the night in conditions worse than the antartic!
Come Thursday there was no improvement and so Luke was blue lighted to Alder Hey, his second home. In a nutshell he had an infection in his central line but as he has only just got over Endocarditis they were worried it could flare up again which would be very bad news. He had 2 weeks of IV antib's and then they felt it was all gone. They really wanted to get rid of his line but as his veins have been used over and over for bypass, and will again in the future, his veins are too precious so they have left it in and hopefully it will not send him septic again.
Whilst we were in they also did his colonoscopy as his condition is getting worse and they were quite shocked when they saw it for themselves. They took some biopsies and at first believed it may be Crohns disease but now believe it is something more complex and so have taken the biopsies for further investigation. We will go back Wednesday and hopefully will get a little further into whats going on. For now we will stick to the TPN. At least we are home and Luke is extremely happy to be back out in the sun with his mates.
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